Sunday, April 19, 2009

GREAT STRIDES was a success!



So today was the first official walk for GREAT STRIDES in the Tri Cities to benefit the Cystic Fibrosis Foundation, and it was awesome! Initially Richland was just a "pilot site" with a goal of $25,000 to raise, to actually become an "official site. This morning at the beginning of the event, we had a raised an impressive $15,000, but were still short of our goal by quite bit. But about half way through the event, we hit our mark and then some!

We met some fellow CF'ers and made some great connections. It was all very exciting and Matt and I really look forward to being even more involved next year! Apparently Team Gregory has made a real impression on the Committee members for our chapter, and they wanted to make sure we would be back next year with even more enthusiasm and passion for the cause.

How wonderful to have that kind of impact on the people in our community.

So I just want to say thank you again to all our team members and sponsors for doing such a fantastic job! I really hope you enjoyed yourselves as much as Matt and I did! You guys are amazing and we're so blessed to have such kind and giving people in our lives to take such an interest in something so important to us!

Below is a little snippit from the local news. If you pay attention, then you can see quite a few of our team members!


Wednesday, April 15, 2009

26 week ultrasound...

So we had another ultrasound this morning! 26 weeks, can you believe it? Just to follow up on the two little echogenic spots in her heart. Nothing to be worried about though. Just something to follow, which we are fine with, since that means more ultrasounds! LOL

So drum roll please.... She now weighs 2 lbs 1 oz!!! She has gained a whole pound in the last four weeks! And since we have another u/s sched for another four weeks, she will probably put on another pound! whew!

So everything looks good. She was head down and had her little face tucked away, so we didn't get to see to much of her face. From what it looked like today though, its looking more like my nose than Matt's now, but I really think its just cause she was all squished in the corner and with both her hands up by her face. But the sonographer still managed to snag a couple cuties. Maybe I'm partial. LOL

Tuesday, April 14, 2009

A week full of appointments!

To start our crazy week of appointments and activities, yesterday Matt had an appointment in Seattle at UW for a regular CF clinic visit. As it happens Matt has been feeling under the weather, so we were pretty sure it was time for a "clean out" as well.

"Clean outs" for those of you who aren't familiar, are usually about 2 weeks worth of IV and oral antibiotics and steroids to beef Matt up. It can be done either in the hospital or on Home Health Care, where he just hooks himself up to the med pump and what not. They're usually pretty comparable as far as health outcome, but Matt likes to do half and half. The hospital gets to cook and clean for him the first week, and then I get to the second! LOL But this time we opted for just Home Health Care, since the next week and a half are so jam packed with good times! LOL

So Monday was UW, Tuesday is Option Care and OB, Wednesday is U/S, Thursday and Friday we don't have anything "scheduled" but we'll see how that goes, Saturday I'm going to a cousin's baby shower (who happens to be due the same day we are!), Sunday is the CF walk, and Monday a Family Dr appt!

Whew! So we will be hopping all over town this week! We'll see how much energy we actually have for the walk this Sunday!

Hope to see you all there!

Thursday, April 9, 2009

Cystic Fibrosis Documentary Film

So as some of you know, or can see on the right side of the page, there are a couple CF related blogs that I follow pretty regularly. Obviously there are tons and tons out there, but for what ever reason, I picked these 2 to follow the closest.

Anyway, through CF Husband's blog I saw that there is an upcoming documentary about a girl named Eva with Cf and her journey through a double lung transplant. Well, the trailer for the film has been released, and, in fact, the film itself has been picked up and will be shown at the largest documentary film festival in North America, Toronto's Hot Docs!

Please, take a few minutes to watch The Trailer for 65_REDROSES, and (especially if you have a personal connection with CF and/or Transplant) please, consider blogging about this film as well so that we can raise as much awareness and support as possible!


You can also join the 65_REDROSES Facebook Group to show your support! And, visit the official 65_REDROSES Website to learn more about the film! Way to go Eva!